Who is the service for?
We offer a children’s nursing and psychology service within the community for children with life threatening, life limiting conditions.
What we do
We work closely with a team of clinicians with different specialities to support families to care for their children in the place they call home.
We can help with:
- Clinical tasks that can be done safely at home to avoid a hospital visit such as blood taking, specimen collection, sleep studies.
- Planning with the multi-professional teams to meet the child’s nursing needs.
- Training families and carers in specific nursing tasks.
- Discharge planning to smooth the path between hospital and home.
- Palliative care and end of life planning when appropriate.
- Bereavement support.
- Transition planning into adult services.
- Assessment and individualised care planning for each child.
Continuing Care Team (CCT)
The Continuing Care Team develop, manage, and deliver care to children who have met the required Children’s Continuing Care eligibility through the local Integrated Care Board. The care is delivered by specially trained lifetime support workers and nurses all year round who provide overnight support to parents and in school settings.
Lifetime Psychology Service
The clinical psychology team work alongside the nursing team to support the emotional and psychological wellbeing of the family. Psychology work with the children/young people themselves, siblings and members of the family who are involved in caring. The team’s work includes:
- Helping you come to terms with diagnosis and the future.
- Support with relationships and talking about difficult issues with each other and people outside the family.
- Managing difficult treatments.
- Managing psychological difficulties such as anxiety, trauma, depression or other difficult thoughts, feelings, and behaviours.
- Helping to make decisions about now or the future in relation to a child’s health condition.
- Group support e.g. sibling group, family days, and participation groups.
- Working with other professional networks such as schools or hospitals to improve quality of life and care for a child/family.
- To manage loss and bereavement.
Information and signposting
- Jesse May provide at home nursing and respite care for children and young people that have a terminal or life-limiting condition throughout the Southwest.
- Charlton Farm aims to help and support families who face the emotional and physical strain of caring for children who, sadly, are not expected to live into adulthood.
You can find information about the Lifetime Service in our leaflet library, in the resources below.
Contact us directly
If you are a parent, carer, school or a professional and would like to have a brief chat with a member of the team please contact Lifetime directly on:
- Telephone: 0300 124 5916
- Email: SIRCH.Lifetime@nhs.net
Getting more help (more extensive goal-based help)
Parent/carers might find it helpful to join one of our parent/carer participation groups. Please email the Lifetime Service using the below contact details to enquire about these and Lifetimes Clinical Psychologists will provide information on the upcoming dates/times of these events.
- Telephone: 0300 124 5916
- Email: SIRCH.Lifetime@sirona.org.uk